Communicating rare diseases and disorders in the digital age
Advances in medical technologies and clinical practice book series./ [edited by] Liliana Vale Costa, Sónia Oliveira.

Oliveira Sónia; Costa Liliana Vale

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dc.contributor.author	Costa Liliana Vale
dc.contributor.author	Oliveira Sónia
dc.date.accessioned	2024-01-29T22:41:52Z
dc.date.available	2024-01-29T22:41:52Z
dc.date.issued	2020
dc.identifier.citation	Communicating rare diseases and disorders in the digital age Advances in medical technologies and clinical practice book series. - 1 online resource (xxiii, 412 pages) : - URL: https://libweb.kpfu.ru/ebsco/pdf/2372578.pdf
dc.identifier.isbn	1799820890
dc.identifier.isbn	9781799820895
dc.identifier.uri	https://dspace.kpfu.ru/xmlui/handle/net/181085
dc.description	"Premier Reference Source" -- Cover.
dc.description	Includes bibliographical references and index.
dc.description.abstract	"This book explores the use of computer-mediated communication in rare diseases and disorders"--
dc.description.tableofcontents	Chapter 1. Talking about rare diseases : a compendium on rare diseases and online news -- Chapter 2. Health-related communication and rare diseases : a passport for the patient journey -- Chapter 3. Designing sustainable social media health communication campaigns for promoting rare diseases -- Chapter 4. Digital media in rare diseases or "knowledge is power" : the role of EURODIS in creating awareness and diagnosing rare diseases -- Chapter 5. Public media coverage of rare diseases and disorders : the case of Spanish public broadcasting corporation -- Chapter 6. Representation of patients with rare diseases in Spanish media -- Chapter 7. Networks in rare diseases : identities, partnership, and advocacy in Brazil -- Chapter 8. Challenges of parents with children with rare diseases in Portugal : a relational perspective -- Chapter 9. Neuropsychiatry in late onset tay-sachs disease : key features and possible etiology of psychosis -- Chapter 10. Portraying rare and misdiagnosed diseases in movies : a content analysis, 1980-2018 -- Chapter 11. How is the administrator's experience in managing health facebook groups? The impact of social media in patients with IBD.
dc.language	English
dc.language.iso	en
dc.relation.ispartofseries	Advances in medical technologies and clinical practice (AMTCP) book series
dc.relation.ispartofseries	Advances in medical technologies and clinical practice book series.
dc.subject.other	Rare diseases -- Information resources.
dc.subject.other	Medical informatics.
dc.subject.other	Communication in medicine.
dc.subject.other	Social media in medicine.
dc.subject.other	Medicine -- Data processing.
dc.subject.other	Social media.
dc.subject.other	Rare Diseases
dc.subject.other	Health Communication
dc.subject.other	Social Media
dc.subject.other	Medical Informatics Applications
dc.subject.other	Medical Informatics
dc.subject.other	Maladies rares -- Sources d'information.
dc.subject.other	Médecine -- Informatique.
dc.subject.other	Communication en médecine.
dc.subject.other	Médias sociaux en médecine.
dc.subject.other	Médias sociaux.
dc.subject.other	social media.
dc.subject.other	Communication in medicine.
dc.subject.other	Medical informatics.
dc.subject.other	Social media in medicine.
dc.subject.other	Electronic books.
dc.subject.other	Electronic books.
dc.title	Communicating rare diseases and disorders in the digital age Advances in medical technologies and clinical practice book series./ [edited by] Liliana Vale Costa, Sónia Oliveira.
dc.type	Book
dc.description.pages	1 online resource (xxiii, 412 pages) :
dc.collection	Электронно-библиотечные системы
dc.source.id	EN05CEBSCO05C2476